Ethics & Human Research
- Ethics & Human Research
Privacy Risks in Microbiome Research:
Public Perspectives before and during a Global PandemicJuly-August 2022
Read the PostEthics & Human ResearchWe assessed public perspectives of microbiome research privacy risks before and after a nationwide emergency was declared in the United States regarding the Covid-19 pandemic. From January to July of 2020, we conducted an online survey of perceived privacy risks of microbiome research among U.S. adu...Read the Post - Ethics & Human Research
Ethical Considerations during the Informed
Consent Process for Acute Ischemic Stroke in
International Clinical TrialsJuly-August 2022
Read the PostEthics & Human ResearchWe sought to investigate the experiences of researchers in existing active-control trials in acute ischemic stroke comparing investigational therapy to tissue plasminogen activator (tPA) in order to identify the approaches and challenges in obtaining informed consent. Out of 401 articles evaluated, ...Read the Post - Ethics & Human Research
Perspectives from a Predominantly African
American Community about Biobank
Research and a Biobank Consent FormJuly-August 2022
Read the PostEthics & Human ResearchMinority populations have been underrepresented in clinical trials, as well as in research biobanks that are created to conduct research with participants’ biospecimens and related medical and research data. Biobank research raises issues about informed consent and privacy and the confidentiality ...Read the Post - Ethics & Human Research
Big Health Data Research and Group Harm:
The Scope of IRB ReviewJuly-August 2022
Read the PostEthics & Human ResearchMuch of precision medicine is driven by big health data research—the analysis of massive datasets rep-resenting the complex web of genetic, behavioral, environmental, and other factors that impact human well-being. There are some who point to the Common Rule, the regulation governing federally fun...Read the Post - Ethics & Human Research
Developing and Implementing Electronic Consent Procedures in Response to Covid-19 Restrictions
July-August 2022
Read the PostEthics & Human ResearchThe Covid-19 pandemic resulted in unprecedented restrictions on many public, private, and workplace activities throughout the United States and elsewhere. When restrictions were imposed, we were conducting a type III hybrid effectiveness-implementation trial in 10 pediatric trauma centers. In respon...Read the Post - Ethics & Human Research
Nothing about Us without Us: Inclusion and IRB Review of Mental Health Research Protocols
May-June 2022
Read the PostEthics & Human ResearchResearch on mental health and illness presents a variety of unique ethical challenges. This article argues that institutional review boards (IRBs) can improve their reviews of such research by including the perspectives of individuals with the condition under study either as members of the IRB or as...Read the Post - Ethics & Human Research
Ethical Considerations for Parent-Adolescent Dyadic Research
May-June 2022
Read the PostEthics & Human ResearchOver the last few years, the use of dyadic research methods has expanded considerably. One area that has benefited from this type of research is the study of the family unit, particularly parent-adolescent dyads. Dyadic research allows investigators to assess relationship dynamics, processes, and co...Read the Post - Ethics & Human Research
Influence of Dispositional Optimism on
Ethically Salient Research Perspectives:
A Pilot StudyMay-June 2022
Read the PostEthics & Human ResearchResearch participants should be drawn as fairly as possible from the potential volunteer population. Underlying personality traits are underexplored as factors influencing research decision-making. Dispositional optimism, known to affect coping, physical health, and psychological well-being, has bee...Read the Post
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Ethics & Human Research (formerly IRB: Ethics & Human Research) aims to foster critical analysis of issues in science and health care that have implications for human biomedical and behavioral research, including developments that bring new challenges to existing ethical, regulatory, and policy frameworks governing research with humans in the United States and elsewhere. Six issues of the research ethics journal are published each year, containing an assortment of commentaries, case studies, peer-reviewed scholarly articles, and book reviews.
To access supporting information for articles in E&HR, such as tables, figures, and appendices that do not appear in the journal itself, see this page.
For prior issues of IRB: Ethics & Human Research, please visit Jstor.org.
Authors include experts in research ethics who come from a wide range of academic disciplines and professions, researchers who conduct biomedical and behavioral research, and policy-makers. We welcome submissions from new authors. E&HR’s readership includes ethics committee members, institutional leaders, researchers, and scholars from many academic disciplines.
Our submissions guidelines can be found here.
For permissions, contact Wiley Online Library.
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Karen Maschke, editor Laura Haupt, managing editor Julie Chibbaro, staff editor Nora Porter, art director | Editorial Board
Laura Beskow, PhD, MPH Vanderbilt University Barbara Bierer, MD Harvard University Alex Capron, LLB University of Southern California Stephanie Solomon Cargill, PhD St. Louis University Rebecca S. Dresser, JD, MS Washington University in St. Louis Carl Elliott, MD, PhD University of Minnesota Holly Fernandez Lynch, JD, MBE University of Pennsylvania Joseph J. Fins, MD Weill Cornell Medical College Paul Ford, PhD Cleveland Clinic Cristine Grady, MSN, PhD National Institutes of Health Clinical Center Steven Joffe, MD, MPH University of Pennsylvania Jonathan Kimmelman, PhD McGill University Nancy M. P. King, JD Wake Forest University Susan Lederer, PhD University of Wisconsin–Madison Alex John London, PhD Carnegie Mellon University Suzanne Rivera, PhD, MSW Case Western Reserve University Mark A. Rothstein, JD University of Louisville Laura Stark, PhD Vanderbilt University Jeremy Sugarman, MD, MPH, MA Johns Hopkins University Benjamin S. Wilfond, MD Seattle Children’s Research Institute |
ISSN 2578-2355 print; ISSN 2578-2363 online
Publisher: Wiley
Human Research Ethics
Human Subject Research Ethics
