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    Forum Posts by
    Maartje Niezen

    • Shortcomings of the Revised “Helsinki Declaration” on Ethical Use of Health Databases

      Posted on November 2, 2016

      Health apps, wearables, and other digital technologies that collect personal health data are profoundly changing the ways that biomedical research is conducted and the role of research participants. These technologies are challenging well-established norms, rules, and principles of medical ethics for the management of personal data in health databases and biobanks. The World Medical Association… Read more

    • Could DTC Genome Testing Exacerbate Research Inequities?

      Posted on January 20, 2016

      Editor’s note: This essay responds to an invitation (issued here and here) to submit commentaries on the ethical implications of partnerships between social media companies and biomedical researchers. The invitation is ongoing.  Last June, the direct-to-consumer genetic testing company 23andMe announced that it had reached the milestone of 1,000,000 genotyped costumers. While the company celebrated… Read more