Posts by Jenny Reardon
Bioethics Forum Essay
Hannah Arendt in St. Peter’s Square
Neither one of us expected to be talking about Hannah Arendt at the Vatican. We had been invited to give talks at the Pontifical Academy of Sciences on the scientific and ethical challenges posed by personalized medicine. Walking across the cobblestones of St. Peter’s Square we began to discuss how society regulates biomedical research. Are institutional review boards capable of dealing with innovations like personalized medicine? Are they too bound by regulations? Can they ask larger questions of meaning when simply following the rules won't suffice? And most worrisome, has their bureaucratic function caused them to mistake regulatory compliance for ethical reflection?
Hastings Center News
New Hastings Center Fellows Elected
The Gift and Weight of Genomic Knowledge: In Search of the Good Biocitizen
THURSDAY, OCTOBER 4 AND FRIDAY, OCTOBER 5, 2018 “This knowledge is irrevocable.” So reads an opening line in the terms-of-service agreement for 23andMe, a leading direct-to-consumer genetic testing company. This remarkable...