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- Citizen Science: Potential Benefits and Ethical Challenges
Posted on October 21, 2019
Why do citizen science projects get started, and what are the ethical challenges facing them? These questions underlie “When Citizens Do Science: Stories from Labs, Garages, and Beyond,” published in Narrative Inquiry in Bioethics, which explores the world of science happening outside the carefully regulated bubble of academic research. “This is not to imply,” writes… Read more
- Living with Pain and Opioid Addiction: Bioethics Narratives
Posted on June 11, 2019
As the opioid crisis reaches a fever pitch, public perception often lumps chronic pain patients and opioid abusers under the stigma-tainted umbrella of drug user. But the full picture of human interaction with pain, pain management, and addiction is far from black and white. In its most recent narrative symposium, Narrative Inquiry in Bioethics published personal stories from those living with chronic pain or opioid abuse disorder. Both groups comment on their need for medical treatment and ethical care.
- Should Doctors Treat Family Members?
Posted on May 11, 2018
Many privileges come with having a doctor in the family: appointments squeezed into busy schedules as personal favors, a conspicuous lack of financial strain, an ability to comprehend both treatment plans and health care systems. But familial and professional roles often clash in a health crisis. “It’s impressive,” an x-ray technician said to Dr. David… Read more
- Natural, Medical, Political Childbirth
Posted on January 31, 2018
“It felt selfish to put my baby at serious risk by pursuing a vaginal birth,” writes Kristen Terlizzi in a collection of essays published recently in Narrative Inquiry in Bioethics. You can read Terlizzi’s full story here. The idea of childbirth is weighted with contradictory expectations. “In listening to women, it became clear to me… Read more
- Cancer and Fertility: Learning from Survivors
Posted on December 6, 2017
As modern medicine improves survival odds, many young cancer patients are living long lives that bear the markings of the disease and its treatment. The side effects of chemotherapy, radiation, and surgery often include damage to fertility, such as early menopause or the loss of viable sperm. A recent issue of the journal Narrative Inquiry… Read more