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Chronic Conditions and End of Life Care

This description is editable from the Categories section under Posts

Bioethics Forum Essay

Individuals Declared Brain-Dead Remain Biologically Alive

A remarkable experiment raises anew questions about whether brain-death is really death.
Read Individuals Declared Brain-Dead Remain Biologically Alive
Bioethics Forum Essay

Do New York State’s Ventilator Allocation Guidelines Place Chronic Ventilator Users at Risk? Clarification Needed

There is a lack of clarity about the New York State Task Force guidelines on ventilator allocation. I believe disability rights concerns regarding the recommendations on chronic ventilator users are well-founded. This lack of clarity may cost lives.
Read Do New York State’s Ventilator Allocation Guidelines Place Chronic Ventilator Users at Risk? Clarification Needed
Bioethics Forum Essay

Confronting Disability Discrimination During the Pandemic

As hospitals and public health authorities devise triage protocols to allocate scarce critical-care resources during the Covid-19 pandemic, people with disabilities are expressing alarm that these protocols devalue them and exacerbate long-entrenched ableism in health care. Lawsuits alleging disability discrimination in have been filed in Washington and Alabama. The U.S. Office for Civil Rights is investigating disability discrimination complaints in triage protocols. The challenge is to develop protocols that will minimize discrimination in the health care system.
Read Confronting Disability Discrimination During the Pandemic
Bioethics Forum Essay

Physician-Assisted Death and Journalism Ethics

A New York Times special report on euthanasia of a Paralympics champion in Belgium was ethically problematic for several reasons.
Read Physician-Assisted Death and Journalism Ethics
Bioethics Forum Essay
stethoscope

Is Medical Aid in Dying a Human Right?

The Kings County Medical Society in New York recently hosted a brunch with New York State legislators. One of the guests was Richard Gottfried, chair of the New York State Assembly Health Committee, who is cosponsoring A2694, a bill legalizing medical aid in dying (MAID). As a medical oncologist with 30 years’ experience treating seriously ill patients, I have concerns about it, and I expressed them to Gottfried.
Read Is Medical Aid in Dying a Human Right?
Bioethics Forum Essay

Live-Tweeting About Dying: Last Lessons from Kathy Brandt

Kathy Brandt, a leader in the hospice and palliative care movement in the United States, died on August 4. She was 53 and had been diagnosed with a rare, highly aggressive form of ovarian cancer in January. Brandt and her wife regularly posted on social media about their family's end-of-life experiences.
Read Live-Tweeting About Dying: Last Lessons from Kathy Brandt
Bioethics Forum Essay
doctor holding patient hand

Religion, Suffering, and the Physician’s Role

Should religion play a role in a doctor's care of seriously ill patients? The author, a hematologist/oncologist who teaches Jewish medical ethics, writes: "A physician's outlook may be shaped by religious standards without having to impose it on the patient."
Read Religion, Suffering, and the Physician’s Role
Bioethics Forum Essay

Should Feeling Tired of Life Be Grounds for Euthanasia?

Should an elderly person in decent health but "tired of life" be able to die with a physician's assistance? The Netherlands is grappling with this question.
Read Should Feeling Tired of Life Be Grounds for Euthanasia?
Bioethics Forum Essay

What Dr. Seuss Saw at the Golden Years Clinic

“Improving patient experience” has become the mantra of many health care facilities in a highly competitive and regulated environment. But just what is it about the patient experience that needs...
Read What Dr. Seuss Saw at the Golden Years Clinic
Bioethics Forum Essay

Ethical Perspectives on Advance Directives for Dementia

Four articles in the Hastings Center Report make an array of claims about  whether advance directives should or should not be used to instruct caregivers to withhold oral feeding of...
Read Ethical Perspectives on Advance Directives for Dementia
Bioethics Forum Essay

Avoiding Dementia, Causing Moral Distress

In “Avoiding Deep Dementia,” an essay in the current issue of the Hastings Center Report, legal scholar Norman Cantor explains why he has an advance directive that calls  for voluntary...
Read Avoiding Dementia, Causing Moral Distress
Bioethics Forum Essay
Hands holding hands

Jahi McMath, Race, and Bioethics

Twice upon a time, there was a girl who died. The death certificate that New Jersey issued to 17-year-old Jahi McMath on June 22 was the second one issued for...
Read Jahi McMath, Race, and Bioethics
Bioethics Forum Essay

Envisioning Civic Palliative Care

Dying cannot be understood properly, or responded to well, without recourse to the connections between the dying experience and the larger social structures that make up a social and civic...
Read Envisioning Civic Palliative Care
Bioethics Forum Essay
man holding a chipboard and taking notes on it

A Single-Payer Bubble?

In an earlier piece, “Trumping Drug Costs,” I looked at out-of-pocket costs as the pivotal issue with drugs. They can be a particularly heavy burden on the elderly, taking money...
Read A Single-Payer Bubble?
Bioethics Forum Essay

Love and Boundaries in Medicine

It’s a little-known and rarely discussed fact of medical practice that doctors value the ability to love our patients. If the thought of doctors loving patients makes you queasy, be...
Read Love and Boundaries in Medicine
Bioethics Forum Essay

Hawaii’s New End-of-Life Law: Do the Additional Safeguards Withstand Scrutiny?

Last month, Hawaii became the seventh state, with the District of Columbia, to legalize physician-assisted suicide. Similar to some of the other state laws, Hawaii’s Our Care, Our Choice Act...
Read Hawaii’s New End-of-Life Law: Do the Additional Safeguards Withstand Scrutiny?
Bioethics Forum Essay
older women holding each others hands

Palliative Care vs. Cancer Research

The death of former first lady Barbara Bush at age 92 was noteworthy in many ways. She was by all accounts smart, sharp and funny, and a fine, helpful wife...
Read Palliative Care vs. Cancer Research
Bioethics Forum Essay

Evaluating Recommendations to Increase Organ Donation

While the U.S. system of organ donation and transplantation is in a state of growth for the fifth year in a row, the call for new strategies to accelerate that...
Read Evaluating Recommendations to Increase Organ Donation
Bioethics Forum Essay

Does the Future Belong to Assisted Death?

I have been opposed to physician-assisted death for well over 30 years. I need to go back to my early days with this issue to lay out some of my...
Read Does the Future Belong to Assisted Death?
Bioethics Forum Essay

Vive la Bioéthique? France’s Bioethics Initiative

Little noticed in the United States but a big deal in France, President Emmanuel Macron announced in January that he is creating a bioethics commission to review the country’s policies...
Read Vive la Bioéthique? France’s Bioethics Initiative
Bioethics Forum Essay
doctor holding patient hand

Has Physician-Assisted Death Become the “Good Death?”

“Death with dignity” for the past 40 years has meant, for many people, avoiding unwanted medical technology and dying in a hospital.  A “natural” death at home or in a...
Read Has Physician-Assisted Death Become the “Good Death?”
Bioethics Forum Essay
young hand holding older hand

Who “Persists” in Opposing DNR Orders? Demographics Matter

Reading “After DNR: Surrogates who persist in requesting cardiopulmonary resuscitation” in the Hastings Center Report, I was reminded of Senate Majority Leader Mitch McConnell’s chastisement of Senator Elizabeth Warren’s opposition...
Read Who “Persists” in Opposing DNR Orders? Demographics Matter
Bioethics Forum Essay

Is Death in Trouble?

Death is beginning to show its age, though I hesitate to even mention that possibility.  With an obviously big ego and its intimidating black cloak and scythe, it has always...
Read Is Death in Trouble?
Bioethics Forum Essay
aging white man looking out a window

The Lady Writer and the Valkyrie: Magda Szabo’s Novel The Door

An old woman desperately needs medical attention. Yet she fiercely refuses every offer of help from friends, neighbors, and the local doctor. No one will get past her door, she...
Read The Lady Writer and the Valkyrie: Magda Szabo’s Novel The Door
Bioethics Forum Essay

Sweet Grapes at the End of Life

Ms. Rita, whom I met as a volunteer at a local nursing home, was the most ardent lover of grapes I have ever known. She was confined to a wheelchair...
Read Sweet Grapes at the End of Life
Bioethics Forum Essay
number candles of 100 on a cake

On Living to 100 or More

Sometime around my mid-50’s I began to ask myself a question: how long should I want to live? My father had died at 64, my mother at 85, my various...
Read On Living to 100 or More
Bioethics Forum Essay
hand on cane

Assisted-Dying Provisions: California Legislature Says Yes, the U.K. Says No

A new chapter in efforts to secure legal provisions for physician-assisted dying began last week when the California State Legislature voted to approve the End of Life Option Act. If Governor Jerry...
Read Assisted-Dying Provisions: California Legislature Says Yes, the U.K. Says No
Bioethics Forum Essay
Oliver Sacks, bald, aging white man holding his hands up

The Medical Humanity of Oliver Sacks: In His Own Words

We science-medicine-poetry junkies, along with a sizeable portion of the world’s population, are mourning the death of Oliver Sacks, the neurologist and author who died last Sunday from metastasized melanoma. And as...
Read The Medical Humanity of Oliver Sacks: In His Own Words
Bioethics Forum Essay
older couple

Beyond the “Silver Tsunami”: Toward an Ethic for Aging Societies

I spent last week in Singapore, where an excellent breakfast of noodles and teah o ais limau (Malaysian-style iced tea with lemon) costs about $2 and is served at an open-air hawker...
Read Beyond the “Silver Tsunami”: Toward an Ethic for Aging Societies
Bioethics Forum Essay
holding hands in hospital

Why New Zealand Should Permit Aid in Dying

Having read with interest Josephine Johnston’s essay on the aid-in-dying case before a court in New Zealand, I’d like to elaborate on some salient points. I have been actively involved with...
Read Why New Zealand Should Permit Aid in Dying
Bioethics Forum Essay
smiling couple

Sex, Consent, and Dementia

A 78-­year­‐old Iowa man, Henry Rayhons, has been charged with third­‐degree felony sexual abuse for having sex with his wife, who had severe Alzheimer’s, in her nursing home on May 23,...
Read Sex, Consent, and Dementia
Bioethics Forum Essay
doctor holding patient hand

Dying: Closing the Gap between What We Know and What We Do

Time is running out on fixing the way we die. As readers of this blog know, the courts first declared a right to refuse unwanted life-sustaining treatment in the 1976 Quinlan case....
Read Dying: Closing the Gap between What We Know and What We Do
Bioethics Forum Essay
red string around finger

Controlling the End Game of Dementia

In her New York Times article of January 20, “Complexities of Choosing an End Game for Dementia”, Paula Span reviewed the use of advance directives to withhold food and water as a way...
Read Controlling the End Game of Dementia
Bioethics Forum Essay
doctor holding patient hand

How Brittany Maynard Changed the Conversation about Aid in Dying

Brittany Maynard, the courageous 29-year-old woman with terminal brain cancer, ended her life a month ago today. She and her husband had moved to Oregon so that Maynard could take advantage...
Read How Brittany Maynard Changed the Conversation about Aid in Dying
Bioethics Forum Essay
man on street

More French Paradoxes

Death is hard to deal with anywhere, but France has some contradictory ways of providing end-of-life care, as two recent articles discuss. On the lighter side, Agence France-Presse reports on...
Read More French Paradoxes
Bioethics Forum Essay
playing piano

Alzheimer’s Disease, Biomarkers, and Suicide: Why We Need to Think About All Three Together

Recently, I spoke with a seasoned health care reporter who was interested in Alzheimer’s and biomarkers because of his own family’s history of this disease. He started by asking, “Why...
Read Alzheimer’s Disease, Biomarkers, and Suicide: Why We Need to Think About All Three Together
Bioethics Forum Essay
Droppers and Test Tubes, both filled with a pink liquid on a soft blue background

A Blood Test to Predict Alzheimer’s Disease: What’s the Elephant in the Room?

I recently gave a talk about Alzheimer’s disease and asked people to imagine two individuals, Manny and Sue. Manny died at 85; he was showing signs of age but living...
Read A Blood Test to Predict Alzheimer’s Disease: What’s the Elephant in the Room?
Bioethics Forum Essay
Doctor Looking at Neuroimaging

Bioethics and the Dogma of “Brain Death”

Two cases involving “brain death” have received considerable public attention, including commentary by several well-known bioethicists. In commenting on these cases the bioethicists have stated, in no uncertain terms, that...
Read Bioethics and the Dogma of “Brain Death”
Bioethics Forum Essay
hands holding ultrasound photo

An ICU Nurse Discusses Brain Death

Brain death is an immensely challenging concept to grasp, even for health care providers. The patients look like any other patient in the intensive care unit; they have vital signs,...
Read An ICU Nurse Discusses Brain Death
Bioethics Forum Essay

U.K.’s Landmark Case on Withholding Treatment Affirms the Importance of Patients’ Values

Family Lose Right-to-Life Case at U.K.’s Highest Court.” “Judges ‘Right’ to Allow Man to Die.” “Widow Loses ‘Withdrawn Treatment’ Case.” These were the headlines on a recent Supreme Court decision...
Read U.K.’s Landmark Case on Withholding Treatment Affirms the Importance of Patients’ Values
Bioethics Forum Essay

Getting from “is” to “ought” Near the End of Life

 There is a saying in ethics: you can’t get an “ought” from an “is.” Descriptions of the world as it is do not reveal truths about the world as it...
Read Getting from “is” to “ought” Near the End of Life
Bioethics Forum Essay

Is Five Hours Too Short to Say Goodbye? My Dad’s Rapid Autopsy

My sister called: “Get the orange card out of my wallet on the table. We need to call the study people.” In July, we got the news – Dad’s colon...
Read Is Five Hours Too Short to Say Goodbye? My Dad’s Rapid Autopsy
Bioethics Forum Essay

What if the Patient is Your Mother?

The problems with end-of-life care are clear enough. Patients and their families/significant others still have trouble talking with one another and their doctors about how they would and would not...
Read What if the Patient is Your Mother?
Bioethics Forum Essay

A Peaceful Death or a Risk to People with Disabilities?

Armond and Dorothy Rudolph of New Mexico were evicted from their assisted living facility in January 2011, after administrators called the police and rescue workers and informed them the couple,...
Read A Peaceful Death or a Risk to People with Disabilities?
Bioethics Forum Essay

Goldilocks and the Three Hospice Patients

Goldilocks, all grown up and working as a Medicare hospice auditor, checks the records of three patients.  She frowns at Mr. Brown Bear’s record.  He was referred to hospice three...
Read Goldilocks and the Three Hospice Patients
Bioethics Forum Essay

Euthanasia in Belgium: The Untold Story

Belgian twins, Eddie and Marc Verbessem, were euthanized by lethal injection at Brussels University Hospital in Jette in December. The Verbessem brothers, deaf since birth, were cobblers by trade who lived and...
Read Euthanasia in Belgium: The Untold Story
Bioethics Forum Essay

The Death of a Pet: A Glimpse into the Human Future

For some years I have been writing about end-of-life care and, of late, focusing on the high costs of that care. I recently had a painful but revealing insight into...
Read The Death of a Pet: A Glimpse into the Human Future
Bioethics Forum Essay

The Trial of “Death by Medicine”: An Interview with Lisa Krieger

On February 5, Lisa Krieger, a science and medicine writer for the Mercury News in San Jose, Ca, published a remarkably moving and insightful article about the protracted dying of her 88-year-old father. Suffering...
Read The Trial of “Death by Medicine”: An Interview with Lisa Krieger
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