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Caregiving

  • Bioethics Forum Essay

    Humanity on the Brink: Narratives of Caregiving and Dementia

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    Bioethics Forum Essay
    Newly published first-person stories of the challenges, struggles, and joys of providing care for family members or another close person with Alzheimer's disease and other types of dementia "depict humanity on the brink."
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  • Bioethics Forum Essay

    On Being a Foster Parent During Covid

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    Bioethics Forum Essay
    I knew that being a foster parent would be demanding, but I was unprepared for the extent of the challenges, which were exacerbated by the pandemic.
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  • Hastings Center News

    Dementia and the Ethics of Choosing When to Die

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    Hastings Center News
    As the American population ages and dementia is on the rise, The Hastings Center is embarking on pathbreaking research to explore foundational questions associated with the dementia trajectory and the concerns of persons facing this terminal condition. This new research is made possible by a major g...
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  • Bioethics Forum Essay

    Old Jews

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    Bioethics Forum Essay
    Old Jews are why I am who I am. Not only the old Jews you’d expect–my grandparents and great-grandparents, who came here because, as I learned for a family history project in third grade, “it was bad in Russia.”
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  • Bioethics Forum Essay

    Ethical Perspectives on Advance Directives for Dementia

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    Bioethics Forum Essay
    Four articles in the Hastings Center Report make an array of claims about  whether advance directives should or should not be used to instruct caregivers to withhold oral feeding of a person who reaches a designated stage of  dementia. I would like to advance some central ethical observations on th...
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  • Hastings Center News

    Hastings Scholar Examines the Financial Burden of Long-Term Care

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    Hastings Center News
    Nearly 11 million Americans use long-term care for help with daily tasks such as bathing and preparing meals, and yet few have private long-term care insurance. Thus, most of the cost of this care, which averages $140,000 a year, falls on family members and Medicaid. The scope of the problem and what...
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  • Bioethics Forum Essay

    Envisioning Civic Palliative Care

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    Bioethics Forum Essay
    Dying cannot be understood properly, or responded to well, without recourse to the connections between the dying experience and the larger social structures that make up a social and civic community. To develop this perspective further, it is important to envision a new kind of palliative care system...
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  • Bioethics Forum Essay

    Love and Boundaries in Medicine

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    Bioethics Forum Essay
    It’s a little-known and rarely discussed fact of medical practice that doctors value the ability to love our patients. If the thought of doctors loving patients makes you queasy, be reassured. I’m not talking about romantic love but the visceral sense of goodwill and impulse to service that draws...
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  • Hastings Center News

    What Makes a Good Life Late in Life? Nobel Prize Winner and Leading Bioethicist Offer Insights

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    Hastings Center News
    Eric Kandel, winner of the 2000 Nobel Prize in Physiology or Medicine who has done groundbreaking work on the molecular mechanisms of memory, spoke at The Hastings Center on May 22 about the differences between normal age-related memory loss and Alzheimer’s disease, as well as the possibility that ...
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  • Hastings Center News

    What Does It Mean to be a Good Citizen in an Aging Society?

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    Hastings Center News
    That question was the focus of  “Long Term Care in New York City, circa 2030,” a panel discussion hosted by the New York City Bar Association on May 3 that included Hastings research scholar Nancy Berlinger. In 2030, one million New Yorkers will be age 65 or older. This trend is consistent worl...
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  • Bioethics Forum Essay

    Should We Get Ready for Prime Time?

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    Bioethics Forum Essay
    For the first few years after my husband Howard died, I talked to him often. These were not ghostly, paranormal encounters; I was just thinking out loud about my life without him. Ten years later, these occasions happen less frequently, usually connected with an anniversary or a family event. In my i...
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  • Bioethics Forum Essay

    The Lady Writer and the Valkyrie: Magda Szabo’s Novel The Door

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    Bioethics Forum Essay
    An old woman desperately needs medical attention. Yet she fiercely refuses every offer of help from friends, neighbors, and the local doctor. No one will get past her door, she vows. Respecting her autonomy means leaving her alone, possibly to die. Intervening to save her means risking her wrath and ...
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  • Bioethics Forum Essay

    Sweet Grapes at the End of Life

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    Bioethics Forum Essay
    Ms. Rita, whom I met as a volunteer at a local nursing home, was the most ardent lover of grapes I have ever known. She was confined to a wheelchair but she never confined herself to her room, choosing instead to wheel around the halls of her new home, a much duller environment than the exciting New ...
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  • Bioethics Forum Essay

    Lincoln’s Promise: Congress, Veterans, and Traumatic Brain Injury

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    Bioethics Forum Essay
    Perhaps we were naïve. Our plan was relatively simple: we would chart the legislative evolution of programs for veterans with traumatic brain injuries (TBI) to identify policy gaps for this underserved and vulnerable population. With recent media attention highlighting the U.S. Department of Veteran...
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  • Bioethics Forum Essay

    Singapore Case Notes: In the Community, Who is Ethics Education For?

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    Bioethics Forum Essay
    For previous posts on the Singapore Casebook project, a collaboration among the Centre for Biomedical Ethics at the National University of Singapore, The Hastings Center, and the Ethox Centre at the University of Oxford, see here and here .The first edition of this public, web-based casebook, “Maki...
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  • Bioethics Forum Essay

    Administration Reveals Lack of CLASS

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    Bioethics Forum Essay
    The demise of the CLASS (Community Living Assistance Services and Support) Act is the calamitous result of ideological warfare and political cowardice. It would have provided a modest benefit – a basic guaranteed lifetime benefit of at least $50 a day in the event of illness or disability to be use...
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