Researchers increasingly use electronic survey instruments
to collect data in minimal-risk protocols involving human subjects. This study
reports the results from a survey with 52 contact officers of institutional
review boards to assess their IRB’s ability to accurately identify
characteristics of electronic surveys that impact confidentiality and
anonymity, their IRB’s interpretation of these features within the framework of
ethical research, and whether their IRBs believe other formatting characteristics
of electronic surveys are ethically relevant. Overall, IRB policies reflect
technically accurate understandings of the factors that affect anonymity and
confidentiality, though IRBs face challenges surrounding the review and
approval of electronic surveys with minors, protocols using multiscreen surveys
that may impede accessibility for the elderly and persons with visual
impairments, and minimal-risk surveys hosted on external third-party or
commercial servers.
Key words/concepts:
electronic surveys; minimal-risk research; anonymity; confidentiality; security
Researchers increasingly use electronic survey instruments
to collect data in minimal-risk protocols involving human subjects. This study
reports the results from a survey with 52 contact officers of institutional
review boards to assess their IRB’s ability to accurately identify
characteristics of electronic surveys that impact confidentiality and
anonymity, their IRB’s interpretation of these features within the framework of
ethical research, and whether their IRBs believe other formatting characteristics
of electronic surveys are ethically relevant. Overall, IRB policies reflect
technically accurate understandings of the factors that affect anonymity and
confidentiality, though IRBs face challenges surrounding the review and
approval of electronic surveys with minors, protocols using multiscreen surveys
that may impede accessibility for the elderly and persons with visual
impairments, and minimal-risk surveys hosted on external third-party or
commercial servers.
Key words/concepts:
electronic surveys; minimal-risk research; anonymity; confidentiality; security