Click here for a deeper conversation on this topic led by Hastings Director of Research Josephine Johnston.
The protections of GINA play a key role in the decision of many of my healthy patients to decide to undergo genetic testing. My criticism is that GINA is unfair to people who might suffer discrimination in health. insurance for non-genetic reasons.
BIOETHICS FORUM ESSAY
A prominent group of scientists, bioethicists, and other specialists from around the world recently called for a global moratorium on clinical uses of human germline editing—“changing heritable DNA (in sperm, eggs or embryos) to make genetically modified children.” Before a country allows this to proceed, these authors recommend establishing “broad societal consensus in the nation… Read more
The creation of humanlike intelligence in a nonbiological being would be the greatest achievement in human history.
Many experts believe this will happen within decades. What role should, or could, regulatory bodies play?
The federal government’s proposed rule to disqualify families from public housing if any member is undocumented will harm children, families, and cities.
Should religion play a role in a doctor’s care of seriously ill patients? The author, a hematologist/oncologist who teaches Jewish medical ethics, writes: “A physician’s outlook may be shaped by religious standards without having to impose it on the patient.”
The Court of Arbitration for Sport has decided that female athletes with atypically high levels of testosterone must take testosterone-lowering medication in order to compete in certain events. I’m troubled by the precedent this sets.
If virtuous perfection of natural talents is what sports is all about, sports needs more people like Caster Semenya, the South African runner. But she is now ineligible for competing in middle distance events unless she takes medication to suppress her naturally high testosterone levels. Is this fair?
It was unethical for a fertility doctor to use his own sperm to inseminate patients without their consent. But what are the legal harms to the women? To their children?
The new indie movie William explores the question, What would it be like if a Neanderthal were born and raised in a modern, industrialized society today?
Should an elderly person in decent health but “tired of life” be able to die with a physician’s assistance? The Netherlands is grappling with this question.
It is a truism that good ethics begins with good facts. Here are some of the facts about the ethics and politics of heritable human genome editing from 2015 to 2019.
Last month, the journal Nature published a call for a global moratorium on heritable human genome editing. Despite criticism, notably from CRISPR pioneer Jennifer Doudna, the moratorium is just what’s needed now.