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It was unethical for a fertility doctor to use his own sperm to inseminate patients without their consent. But what are the legal harms to the women? To their children?
BIOETHICS FORUM ESSAY
The new indie movie William explores the question, What would it be like if a Neanderthal were born and raised in a modern, industrialized society today?
Should an elderly person in decent health but “tired of life” be able to die with a physician’s assistance? The Netherlands is grappling with this question.
It is a truism that good ethics begins with good facts. Here are some of the facts about the ethics and politics of heritable human genome editing from 2015 to 2019.
Last month, the journal Nature published a call for a global moratorium on heritable human genome editing. Despite criticism, notably from CRISPR pioneer Jennifer Doudna, the moratorium is just what’s needed now.
As a public health researcher interested in brain injuries in sports, I was searching for peer-reviewed literature that examined cultural pressures that cause athletes to minimize symptoms of potentially serious injuries when I came across a 1994 article entitled, “A Little Pain Never Hurt Anybody: A Photo-Essay on the Normalization of Sport Injuries.” The identity… Read more
“Improving patient experience” has become the mantra of many health care facilities in a highly competitive and regulated environment. But just what is it about the patient experience that needs to be improved? Will better food and gift bags do the trick? Or are more basic changes required? To answer that question, I turned to… Read more
This year, The Hastings Center will celebrate its 50th anniversary. The Center was first located on the second floor of my house in Hastings-on-Hudson, N.Y., with some overflow paperwork stored at the home of my neighborhood friend and cofounder, Willard Gaylin. Neither of us had ever run an organization or raised money. I am a… Read more
A preliminary investigation by Guangdong Province in China of He Jiankui, the scientist who created the world’s first gene-edited babies, found that “He had intentionally dodged supervision, raised funds and organized researchers on his own to carry out the human embryo gene-editing intended for reproduction, which is explicitly banned by relevant regulations.” As bioethics scholars… Read more
Despite the appearance of agreement, scientists are not of the same mind about the ethics and governance of human germline editing. A careful review of public comments and published commentaries in top-tier science journals reveals marked differences in perspective. These divergences have significant implications for research practice and policy concerning heritable human genome editing. The… Read more
The introduction of pre-exposure prophylaxis (PrEP) as a means of preventing HIV infections in those at high risk marked a significant step in the fight against the virus. PrEP involves taking the HIV medicine Truvada or a generic version daily. It is now gradually becoming available across the world, particularly for men who have sex… Read more
In their single-minded venture of “producing” (shengchan, in their own word) the world’s first gene-edited babies, He Jiankui and his associates have posed numerous and daunting ethical challenges to China and the world. They can be mapped or identified through these four categories: typical problems related to research ethics; broader political, socio-cultural, and transcultural issues;… Read more
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