Making Informed Consent Meaningful
March 2001 - July 2002
Assuring that individuals who become the subjects of scientific research freely give their full, informed consent to participate is the cornerstone of human subjects protections. But despite new studies and increasing empirical evidence, we still know little about the consent process or about how to translate the theoretical requirement into meaningful practice. To address this gap, The Hastings Center helped the Veterans Health Administration (VHA) to create a "state of the art" conference, "Making Informed Consent Meaningful."
Following on from the conference, the Center collaborated with VHA to develop further tools for researchers, policymakers, and others. Conference proceedings appeared in a supplement to the September 2002 issue of Medical Care. In addition, staff from the Center and VHA built on earlier work by Jeremy Sugarman and colleagues at Duke University, created an annotated, searchable, web-based bibliography of readings and studies in informed consent for research participation.
Center project staff: Thomas H. Murray
Funded by: Veterans Health Administration
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Last Updated: 22 March 2007