Erik Parens and Josephine Johnston Write About Alzheimer's Prediction Post-Kevorkian in TIME.com
In a commentary
in TIME.com, Hastings Center scholars Erik Parens and Josephine Johnston
encourage a careful conversation about assisted suicide, in light of recent
tests that promise to predict Alzheimer’s disease before symptoms start, and in
the wake of the death of Jack Kevorkian, the physician both reknowned and
reviled for advocating for and participating in assisted suicide. “Jack Kevorkian’s fervid
fascination with death made him a deeply unattractive human being,” write
Parens and Johnston. “Yet he forced us to confront questions that, much as we
might want to, we cannot ignore. Do some of us face fates worse than death,
such that it can be rational and reasonable to request help in committing
suicide? And should others of us help them to die? Recent scientific advances
make these questions relevant to millions more Americans…. It is vitally
important for us to explore all of the reasons against allowing or assisting
Alzheimer’s patients to end their lives. And it is equally important to begin
to explore the reasons on the other side.”
Parens and Johnston conclude:
“One of the prices we pay for our new powers of prediction is difficult
conversations about still more difficult choices. Fear should not keep us from
trying to imagine whether we can honor the truly informed requests of people
who believe that the way of dying that fits best with their understanding of a
good life, is to leave before Alzheimer’s fully takes hold. Asking policy
makers, clinicians, disease advocates and others to start taking this
possibility seriously doesn’t mean we have any neat answers to the myriad,
profound questions it raises. We don’t. We do believe, however, that we have an
ethical obligation to face these questions, in solidarity with the millions of
individuals and families who otherwise will have to face them alone.”