However, one of
the report’s disturbing conclusions is that many children with patently
problematic moods and behaviors fail to receive the care recommended by
experts. Systemic and cultural pressures compromise the diagnostic process and
constrain the treatment choices of clinicians and parents, making it
increasingly likely that medication is the only treatment children receive,
even if the combination of medication and psychosocial treatment is recommended
by experts.
The report is
the culmination of a series of five workshops held by The Hastings Center and
funded by the National Institute of Mental Health, which brought together an
interdisciplinary group including psychiatrists, educators, parent advocates,
social scientists and bioethicists. The project was led by Erik Parens and
Josephine Johnston, research scholars at The Hastings Center, who wrote the
report. The report includes 10 commentaries from workshop participants, listed
below.
A video of
Parens and Johnston discussing their report, as well as the full text, can be
found at the project’s website.
The report takes
a critical as well as a sympathetic look at long-running debates about how to
interpret problematic moods and behaviors in children and about whether and how
to intervene. It finds fundamental agreement that some children exhibit patently
dysfunctional moods and behaviors and that these children deserve—though too
often do not get—access to recommended care.
But the authors
also describe inevitable disagreement about, for example, exactly where to draw
the line between normal and unhealthy aggression or exactly how to balance the
need for symptom relief and the need for schools and communities to accommodate
a diverse range of children.
“What we’ve
learned is that diagnoses don’t have clear boundaries—what counts as healthy
and unhealthy anxiety or healthy and unhealthy aggression, for example, is not
written in nature,” said Parens. “Human beings living and working in particular
places and times define them. This leads to inevitable disagreements about
whether a cluster of moods and behaviors is best understood as disordered,
about how exactly to describe some symptoms, and about whether or which
particular diagnosis is warranted.”
“One of our
conclusions is that because diagnosis and treatment decisions invariably
involve value commitments, there will be disagreements, especially on the
margins and in difficult cases,” said Johnston. “How one weighs, for instance,
the parental obligations both to shape children and to let them unfold in their
own ways can influence how one responds to difficult diagnostic and treatment
decisions.”
The report also
concludes that too little is done to improve children’s environments that
contribute to their problematic behaviors.
“We need to
remove the barriers that stand in the way of optimal care for those children
who are suffering from moods and behaviors that no one would consider normal or
healthy,” the authors say.
The project was
designed to better understand the controversies surrounding the diagnosis of
mental disorders in children in the United States, and recent increases in the
use of medications to treat those disorders.
It examined
questions such as: Why are these diagnoses so controversial? Why do some people
feel that children are over-medicated, while others are concerned about under-treatment?
As different cultures have different rates of treatment with psychotropic
medications, how much of what we see in the United States is driven by
context—by individual, familial, or societal values?
The workshops,
held over the course of three years, brought together clinicians, researchers,
scholars, and advocates from a variety of backgrounds with widely diverse
views. The first and last workshops considered the controversies generally,
while each of the middle three workshops looked at them in the context of one
diagnosis—attention deficit hyperactivity disorder, depression, or bipolar
disorder.
The 10
commentaries from workshop participants are by:
- Mary G. Burke, associate medical director
of the Edgewood Center for Families and Children and associate clinical
professor in the Department of Adolescent and Child Psychiatry at the
University of California, San Francisco’s Langley Porter Psychiatric Institute,
- William B. Carey, clinical professor of
pediatrics at the University of Pennsylvania’s School of Medicine,
- Gabrielle A. Carlson, professor of
psychiatry and pediatrics and director of child and adolescent psychiatry at
Stony Brook University’s School of Medicine,
- Peter Conrad, Harry Coplan Professor of
Social Sciences in the Department of Sociology at Brandeis University,
- Lawrence Diller, a
behavioral/developmental pediatrician/family therapist and assistant clinical
professor of pediatrics at the University of California, San Francisco,
- Susan Resko, executive director of the
Child and Adolescent Bioplar Foundation,
- John Z. Sadler, Daniel W. Foster
Professor of Medical Ethics, professor of psychiatry and clinical sciences,
chief of the Division of Ethics and Health Policy in the Department of Clinical
Sciences, and chief of the Division of Ethics in the Department of Psychiatry
at the University of Texas’s Southwestern Medical Center,
- Ilina Singh, Wellcome Trust University
Lecturer in Bioethics and Society at the London School of Economics and
Political Science
- Benedetto Vitiello, chief of the Child
and Adolescent Treatment and Preventive Intervention Research Branch of the
National Institute of Mental Health at the U.S. National Institutes of Health,
and
- Julie Magno Zito, professor
of pharmacy and psychiatry in the Department of Pharmaceutical Health Services
Research at the University of Maryland, Baltimore.